Washington University School of Medicine in St. Louis is committed to providing exceptional care for children with Primary Immunodeficiency Disorders. Here are stories of patients we've helped and news surrounding our fight to cure these rare disorders.
- St. Louis Children’s Hospital is now recognized as a Jeffrey Modell Diagnostic and Research Center for Primary Immunodeficiencies. This was made possible by Vicki and Fred Modell, who established the Jeffrey Modell Foundation in memory of their son, Jeffrey, who died at the age of 15 from complications of Primary Immunodeficiency (PI)—a group of more than 350 genetic disorders of the immune system which affects at least 1 in 500 people.
- The Fall 2017 issue of Guardians Magazine, a St. Louis Children's publication, featured Chase. A one-of-a-kind patient who has primary immunodefiency and enjoys our music therapy program.
- Meet Alex, a 9 year-old who was diagnosed with an immune disorder called immunodysregulation polyendocrinopathy enteropathy X-linked syndrome (IPEX for short) and has received care from our very own, Dr. Cooper, rheumatologist and director of clinical immunology at St. Louis Children’s Hospital and Washington University.