When Maria and Matt Granados noticed their six-year-old daughter, Natalie becoming ill, it was a challenge to find an accurate diagnosis. Finally, Natalie, now 8 years old, received a diagnosis of PYROXD-1, a rare form of muscular dystrophy.
Realizing how many other families experience this kind of frustration when trying to get answers, the two created the Take Part Foundation.
Founded in 2021, the St. Louis-based nonprofit identifies and funds medical research for rare pediatric conditions in which the medical community doesn’t typically invest.